So I know it's been a while since I've been on, and when I do visit I certainly haven't been as active as I've been in the past. I was really sick for a while and in out of the hospital and I've been diagnosed with kidney disease. It's been especially hard since, as most of you know, I'm a riding instructor/trainer which is a really active job. I've just been super lethargic which is so far from who I am its not even funny. I got the diagnosis not too long ago so I'm finally starting a treatment program and starting to feel a little bit better. I promise I'll try my best to post up more often :)
Damn I don't know you and rarely post here but here's wishing you the best. Kidneys are nothing to mess with. I am diabetic so I know how fragile they are and how kidney failure can drastically alter your life. Good luck!
if you dont mind me asking what kind of kidney disease do you have?....my wife was diagnosed with FSGS almost 3 years ago and shes fighting strong....been pretty much the same for the last couple of years after getting off prednisone.
Sorry you have ben sick and feeling bad.I hope that the doctor can get you feeling good again.I have been wanting to talk horses with you. Maybe when you are back up to speed ,we can do that sometime...George
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Three grand essentials to happiness in this life are something to do, something to love, and something to hope for.
Joseph Addison
Wet - I'm glad to hear she's fighting strong! And off Prednisone, it's such an awful awful drug. I mean it has its benefits, but the side effects can be irreversible. I really wish there was an alternative for people who really need it.
I have PKD which is genetic. It's interesting because of the diagnostic I'm now going to be representing the argument for adopted children (and there adopted parents) to receive medical records on both biological parents at birth (or time of adoption). It's something I've always believed strongly in (and for those of you who don't know I am adopted) so I guess thats a positive side to all this :) My birth mother had symptoms of being a carrier of PKD but what never diagnosed with any kind of a kidney issue, therefore I never knew about it because it wasn't included in the "at risk" issues that are disclosed with the adoption.
I miss you guys lots! I'm going to try my hardest and come out to one of the meets/shows before the end of the season.
Pheonix...If you didn't know I am Don's (Wets) Wife. Any kind of steroids are nasty but they said it was a 50/50 shot to do some healing on my kidneys. It didn't work! I am on this Ace inhibitor called Diovon that has been my miracle medication. It helps control my blood pressure and filter my kidneys at the same time. The name of my disease is Focal Segmented glomerislorsis. It is basically scaring on the filtering part of my kidneys. They do not know what causes my disease. I looked up your diseases and honey if you need anything at all...I've been there. I wish I knew someone that went thru it all. I am continuously going thru the motions and you'll have the change your life style. From me it was worth it to extend it for the the family I have and to be able to offer help to some one else. Some sites to help you.
www.pkdcure.org www.kidney.org
If you are interested in finding out more on FSGS www.nephcure.org
Thanks for the support Kellee, it was really unexpected, I've already been told mine is an usual case. I was fine, then I was sick, then I went to the ER for excruciating lower back pain. Now I'm here. On the bright side though, I'm starting to feel healthier, but it's been miserable not riding and well not wanting to ride. I just purchased a foal, and now that my back is in less pain, I've been spending lots of time working with him. If you don't mind me asking how did you find out? I guess that's been the hardest part for me, I really didn't expect anything. The other thing that came up with my Doctor's was having kids, because this is a genetic disease and has 50/50 percent chance of being passed on to your kids. I don't know if I could willing have a child knowing that, and the idea of potentially not being able to have kids, has been a lot harder than I thought.
How did I find? Well I got a UTI and it was so bad I ended up in the ER with really bad back pain. I understand where you are coming from with the back pain. I thought I was going to die. It so happened that it was the 4th UTI that year. Thank God I mentioned it, because it prompted the ER Dr's to check the creatine and everything. When I first got sick my creatine was a 3.0. I have been floating between 2.1 and 2.5 now. Do you know yours? If not, find out! Find out your GFR too! This will give you, your kidney filtering rate! All important to know. As far as kids go I am not going to lie to you. Your situation is completely different and you will make up your own mind. Being a women I understand the naturual need to want to mother a child. I also do believe that things happen for a reason. At least they gave you a 50/50 shot! Now a days they have preventive methods you can talk to your doctor about and test during pregnancy to find out early on. So you can prepare your child has they grow up to pretect (or prevent) from some many types of genetic diseases. I was not given a choice. I was told that if I tried to get pregnant or give birth... myself and/or the child would definately die. So instead of dying for the child I so desperately wanted I choice to live and fight for the one I have. I got my tubes tied a year and half ago and I hope to adopt a child some day.
I know being sick and coming to terms with things may get in the way of things that you love or dreams you might have for yourself...like riding or having children. It is a process that will only make you stronger...I promise.
PS If starting to feel better already...I am so pleased!
yesterday is history tomorrow is a mystery
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